Yasuhiro KANATANI

International collaboration for a National Registry for Rare Diseases in Japan (Nambyo)

Implementation in Rare Disease

  • One of the field for Application for Modeling But as patients are rare
  • International Cooperation needed
  • International research project ( IRDiRC … )
  • International Registry
  • Policy driven project ( Mandatory, Top-down ..
  • Stakeholders limited
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